Lifewithlol: Lauren's JourneySociety — Organization
|About||Life with lots of love, laughter, and Lauren! Following the journey of a child with Krabbe Leukodystrophy disease. www.lifewithlol.com|
Lauren Olivia Loughheed (LOL) is a beautiful baby with a full head of brown hair and striking blue eyes. She likes stories, music, and hanging out with her puppy Buddy.
Lauren developed normally and was meeting and even exceeding developmental milestones for the first eight months of her life. She was smiling, laughing, and playing in her jumparoo. Lauren then began to slow down, no longer sat up on her own and started to become irritable.
In December 2011, after doing an MRI and a host of other neurological and metabolic tests, Lauren was diagnosed with Krabbe Leukodystrophy.
Description from Mayo Clinic (http://www.mayoclinic.com/health/krabbe-disease/DS00937):
Krabbe disease (KRAH-buh disease) is an inherited, often fatal disorder affecting the central nervous system. Krabbe disease affects about 1 in every 100,000 people in the United States.
The disease affects muscle tone and movement, and may cause vision and hearing loss, among other devastating effects. In most cases, Krabbe disease develops in babies before 6 months of age, although it can occur in older children and in adults.
There’s no cure for Krabbe disease and treatment mainly involves approaches designed to ease symptoms. However, early studies using stem cell transplants to treat Krabbe disease before symptoms begin have had some success.
Lauren leads a full life and is loved by many people around the world! "Like" this page to stay up to date on all the latest with Lauren!